Doug and I have joined TEAM KIDNEY
and are Running for Reason
in the Houston 1/2 Marathon.
and are Running for Reason
in the Houston 1/2 Marathon.
You all know our reason.
Maddie.
Maddie's primary diagnoses are IgA Nephropathy, Thin Basement Membrane Disease, Asthma, and severe allergies. However she has a number of other chronic medical issues that greatly impact her life.
She is strong.
She is a fighter.
She is courageous.
She is also an anomaly to the medical field.
As one of her specialists commented at an appointment a few years ago, we can only hope that one day her symptoms and issues will all be brought together and it will have a diagnosis that doesn't bear her name.
So Doug and I RUN FOR A REASON.
There are so few people that have the combined kidney diseases that Maddie has that very little research is being done on them. It's hard to get any press when only 1% of the population is affected.
Sad.
Very sad, but that is the reality when faced with rare diseases.
So we run for Maddie and others like her...
the nameless other children and teens whose diseases will never get headlines and research dollars cause there just isn't enough of a them to bring attention to their plight.
We invite you to join us in our efforts.
Cause Maddie deserves a cure.
Your tax deductible donation goes to The National Kidney Foundation.
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